Tuesday, March 24, 2009

... and chugging...

Just a quick update. Mielle is still doing well - her strength and energy are great. We stopped reducing the prednisone for a bit because we reduced one of her other meds, the methotrexate, by 40%!!! The dose is based on weight, and she has lost so much in recent months that we needed to make a major adjustment to that med. While I was glad to see it reduced, it is also incredibly nerve-wracking to make a change like that. It puts me on pins and needles, waiting to see if the disease will flare up. But, so far, so good. It's been about 6 weeks, and she just had labs (which means another nightmarish blood draw, but that's another story...) and all the tests look good, so hopefully we will continue reducing the prednisone soon.

Our next visit to Chicago is in April, and I'm absolutely tickled that the lovely Amy Annee will be joining us there for a visit after Mielle's appointment. We're going to have 2 whole days to play! I'm really looking forward to it.

Lucien is also doing well. He's a real little toddler now - he is more and more confident with his walking every day. He's also starting to find his inner 2-year-old and showing us a bit of a rebellious/stubborn/stinker streak... and we're thrilled to see it! (He's still Mr. Delightful!)

In other news, we are getting ready for a long-overdue trip to Virginia to visit Lenny's family. I don't think Lucien has met a single one of his cousins yet. Ouch. It's just been too hard to even attempt traveling since Mielle was diagnosed... but thankfully, things are better at the moment, so we are taking advantage of the opportunity.

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