Everyone's wondering about the details of Chicago... we leave this Sunday, Aug 10. Her appointment is on Monday, and then we have Tuesday to play and have fun. We'll return on Wednesday.
Lenny and I are just juggling, juggling, juggling right now - we are both smack in the middle of jobs, and the appointments never stop, and there are some things I need to do to prepare for the trip... I'll be glad when things slow down a bit.
Mielle had a very encouraging appointment with her rheumatologist at Stanford last week- she's really doing better lately, gaining strength and energy. Her skin is looking better, although she still has her "red days", which completely freak me out. It's great to see her gaining strength, but we know that she is not 100% yet, and the skin inflammation needs to be controlled as well, so she still needs intensive treatment and it will be interesting to see what our Chicago expert recommends for her next steps.
Thanks for all the warm and caring thoughts for our trip. Will update the blog with news as soon as I can.